15 Carleton Road
West Hartford, CT 06107


The Susie Foundation is a 501(c)(3) non-profit organization focused on changing the lives of young caregivers and families struggling with the daily challenges of living alongside Amyotrophic Lateral Sclerosis (ALS). Since our founding in 2013, we have provided innovative programming opportunities that deliver compassionate, enduring, and life changing support services to patients, young caregivers, and families living with the challenges of ALS in southern New England. The roots of our work can be traced back to our organization’s inspiration and namesake, Susan Ready Matthews, diagnosis with ALS. Soon after, our family became intimately and painfully aware of how challenging and traumatizing daily life is alongside ALS. From the loss of physical ability and introduction of anticipatory grief, to the struggles with depression and need for around the clock caregiving, Susan’s journey with ALS taught us about the many burdens levied on individuals and families following diagnosis, while strengthening our resolve to provide support to others impacted by the disease. Since her passing in 2011, we have been working tirelessly to build on Susan’s legacy to ensure families can access life-enhancing support services and technologies to ensure they are best able to lead rich, meaningful, and productive lives. Today, we are proud to provide families and young caregivers across southern New England with a bevy of support services intentionally designed to meet their unique needs .

The Susie Foundation

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